More on The Aicardi Foundation
Adam and Lissa Gumson’s daughter, Ava, is one of approximately 1,000 children worldwide who has been diagnosed with Aicardi Syndrome, an extremely rare congenital neurological seizure disorder affecting mostly young girls, inhibiting the normal development of motor skills, sight, speech and many other neurological areas, causing mild to profound mental retardation. Aicardi Syndrome is so rare that most people (including many physicians) have never heard of it, and research into its cause and cure has been minimal. Thus, raising money for this cause has been quite challenging, and has been done almost exclusively by the families of the affected children.
In October, 2006, the Gumsons and JUPITER LAW CENTER organized and hosted their first annual Halloween fundraising event on behalf of the Aicardi Syndrome Foundation, Inc., a non-profit organization which strives to make the lives of Aicardi girls more functional and fulfilling. In the past four years, JUPITER LAW CENTER has raised almost $60,000.00, all of which has been forwarded directly to the Foundation, which funds research at the University of California in San Francisco and Baylor University in addition to assisting needy families with the purchase of equipment and other unattainable items. The last event was held on Saturday, October 24, 2009.
If you would like to view pictures from this year’s event, please click on the following link:2009 Aicardi Halloween Event Photos
To learn more about Aicardi Syndrome and meet some of the affected children, log on to www.aicardisyndrome.org If you are interested in making a tax-deductible contribution, in any amount, the Foundation’s Federal Tax ID Number is 36-3781527. Checks should be made payable to Aicardi Syndrome Foundation, Inc. with the words “JUPITER LAW CENTER” in the memo field of the check, and can be mailed or dropped off at JUPITER LAW CENTER, Jupiter Creek Professional Center, 1102 W. Indiantown Road, Suite 7, Jupiter, FL 33458-6813.
